Legacy

Multi-Stakeholder Projects

One of the HARMONY Alliance aims is to increase consistency in future clinical trials, allowing for the results to be compared and combined. To do this, clinical trials need to use consistent core outcomes. Therefore, HARMONY Alliance researchers are running several Delphi Surveys to compile Core Outcome Sets (COS) for specific blood cancers/Hematologic Malignancies.

All the Delphi Surveys have been completed for HARMONY and for HARMONY PLUS. Consensus Meetings took place in March, May and October 2022.

Clinical Value Framework to quantify therapeutic value of innovative technologies for HMs

Policy Health Stakeholder Feedback Forum

Access Evidence Framework for innovative technologies for HMs

Qualification of novel methodologies – “Proof-of-Principle” study

Engaging participation of consulting and informing Patient organizations and patients

WM: Delphi Survey Project: Towards a Core Outcome Set for Waldenström Macroglobulinaemia (WM)

MPN: Delphi Survey Project: Towards a Core Outcome Set for Myeloproliferative Neoplasms (MPN)

NHL: Delphi Survey Project: Towards a Core Outcome Set for Non-Hodgkin Lymphoma

MM: Delphi Survey Project: Towards a Core Outcome Set for Multiple Myeloma

MDS: Delphi Survey Project: Towards a Core Outcome Set for Myelodysplastic Syndromes

HL: Delphi Survey Project: Towards a Core Outcome Set for Hodgkin’s Lymphoma (HL)

CML: Delphi Survey Project: Towards a Core Outcome Set for Chronic Myeloid Leukemia (CML)

CLL: Delphi Survey Project: Towards a Core Outcome Set for Chronic Lymphocytic Leukemia

AML: Delphi Survey: Towards a Core Outcome Set for Acute Myeloid Leukemia

Delphi Survey Project: Towards a Core Outcome Set for Acute Lymphoblastic Leukemia (ALL)

Spain

  • PETHEMA – Programa Español de Tratamientos en Hematología
  • Jose Carreras Leukemia Research Institute
  • Spanish CETLAM Cooperative Group
  • Hospital 12 de Octubre – i+12 Instituto de Investigación
  • Hospital Universitario La Fe
  • Fundació Institut Mar D´Investigacions Mèdiques
  • Complejo Asistencial Universitario de Burgos
  • Ramon y Cajal University Hospital
  • Infanta Leonor Hospital
  • Costa del Sol Hospital
  • Hospital General Universitario Valencia
  • Catalan Registry of CML
  • Hospital Universitario de Gran Canaria Doctor Negrín
  • GESMD – Grupo Español de Síndromes Mielodisplásicos
  • FICUS – Fundación de Investigación del Cáncer de la Universidad de Salamanca / CIC Salamanca
  • Registro Gammapatías Castilla y León