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#BIGDATAFORBLOODCANCER Campaign For Patients/General Audience: September 2023 - February 2024

The #BigDataforBloodCancer Awareness Campaign is powered by the HARMONY Alliance in collaboration with the European Hematology Association (EHA).

#ThisIsBloodCancer 

Selecting the best treatment for individual blood cancer patients

Using the power of Big Data to improve the treatment of blood cancers. That is our mission. We have developed the HARMONY Alliance Big Data Platform, which contains anonymized data sets from tens of thousands of patients with blood cancer. These data sets have been donated by hospitals, research institutes, pharmaceutical companies, and other organizations located in almost 40 countries in Europe and beyond. Scientists and doctors, our Partners and Associated Members are using the Big Data Platform to develop more personalized treatments for blood cancer patients. We have identified more than 160,000 patient data sets from 120 institutions across Europe, have a look at our data barometer >

Providing insights into the biology of blood cancers

In the past seven years, HARMONY Alliance research teams have answered critical research questions about blood cancers. Examples of questions that we have addressed in 2022 and 2023 are:  

Would you like to read more about these data-driven scientific results? Check out the press releases at our news page >

We have developed methods that can assist doctors. Tools to decide which patients should undergo intensive therapy and which can safely receive a milder treatment.

Listen to Natacha Bolanos of the Lymphoma Coalition

Listen to Jan Geissler of LeukaNet and CML Advocates Network

Improving the clinical management of blood cancers 

The HARMONY Alliance unites hematology experts and brings together patients, doctors, and scientists, as well as experts from pharmaceutical companies, regulatory agencies, and health technology assessment agencies. Examples of our multi-stakeholder projects:

Sharing anonymized data in a secure way, for research purposes, is like a new form of blood donation in the era of digitalization and Big Data. In result, it has the power to save human lives

Who we are we
The HARMONY Alliance is a European Public-Private Partnership. We are funded by the Innovative Health Initiative (European Commission). Our partners are hospitals, research institutes, patient organizations, medical associations, pharmaceutical companies, IT companies, and regulatory/health technology assessment agencies. More than 120 organizations from 19 European countries already share our mission to personalize treatments for blood cancer patients. 

Blood cancers are we studying
We study all types of blood cancer, including Acute Lymphoblastic Leukemia (ALL), Acute Myeloid Leukemia (AML), Chronic Lymphocytic Leukemia (CLL), Multiple Myeloma (MM), Myelodysplastic Syndromes (MDS), Non-Hodgkin Lymphoma (NHL), Pediatric Hematologic Malignancies, Myeloproliferative (MPN) disorders, and Chronic Myeloid Leukemia (CML). 

Listen to Amir Enshaei, of Newcastle University 

Patients involved
European patient organizations form the HARMONY Alliance Patient Cluster: Acute Leukemia Advocates Network (ALAN), CLL Advocates Network, CML Advocates Network, ChildhoodCancer/CCI Europe, Lymphoma Coalition, MDS Alliance, Myeloma Patients Europe and MPN Advocates Network. Our Patient Cluster representatives and their patient communities are involved in defining outcomes, designing research projects, and informing patients. 

Blood Cancer Awareness Month 2023 and more Awareness Days

We are standing by patients with blood cancer and their families. Data-driven science will increase treatment efficacy, decrease adverse effects, prolong survival, and improve patients’ quality of life. The theme for Blood Cancer Awareness Month 2023 is #ThisIsBloodCancer. Despite more than a million people across the globe experiencing the pain of a blood cancer diagnosis every year, awareness of the disease is still incredibly low.

With our communication and dissemination activities, we hope we will make a meaningful contribution. We are supporting the individual 2023 awareness days in our #BigDataforBloodCancer awareness campaign:

Big Data for Blood Cancer Awareness Day | 30 September 2023

During Blood Cancer Awareness Month and at the 3rd Big Data for Blood Cancer Awareness Day - 30 September 2023 - we are taking the opportunity to connect with the various blood cancer awareness campaigns on social media. A valuable moment to explain how collecting #patient data can improve the treatment of #bloodcancer. 

 

Listen to our valued HARMONY Alliance experts


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